Last night I had the privilege of enjoying a quiet evening
with my mother and grandmother at my home baking cooking and making dinner. It
was a special time for me since I hadn’t had the chance to do this with my own
children in a couple of years. It had been a tradition of our to do. We would
stay up late, put Christmas cartoons on, and start making Christmas cookies.
The kitchen would be a mess. But last night was July 1, 2015 and my grandmother
passed away over two years ago.
I learned much of my cooking abilities from my grandmother.
She taught me all of her secrets and was constantly giving me nifty little
kitchen gadget. She always had a story to go with every scenario. She passed
while living in a home. That night we laughed and baked as we decorated
cookies. I got the privilege of writing down many of her recipes before the
night was over. And it was double special for me. I haven’t been able to follow
this same tradition with my own children in over two years. We had always put
on Christmas cartoons or music followed by spreading out of the cooking making
materials making a mess. By the time we were done the kitchen looked as if the
Keebler Elf tree had been up rooted in my kitchen.
I became frantic the next day when I couldn’t find my
recipes I copied. I searched everywhere. They were grandmother’s and I didn’t
want to lose them. But I never wrote them down to lose them. I asked my wife
about them and she never saw them and my mom never came by.
Individuals suffering from dementia will experience a range of emotions and express thoughts which appear real to them at the moment. Even though these thoughts are typically imaginary or made up, they evoke feelings that are very real to the person and often times causes extreme anxiety, panic or fear.
Hallucinations
An individual with dementia may express
that they see or can hear something that isn’t there. They may be insistent
that these things exist even though they cannot be verified by another person.
Hallucinations may result from changes in the brain, but may also be the result
of medications, infections, vitamin deficiencies and other medical conditions.
It is understandable that individuals
with dementia are completely unaware that their memory is poor or non existent.
To compensate and to make sense of their world, the individual will create
their own interpretation of events. So when things become missing or disappear
or memories of recent conversations or recent events cannot be recalled, then
explanations for things can be blamed on someone else. Directing the blame
elsewhere helps things make sense to the individual at the moment.
Hallucinations and
Delusions
Hallucinations are not a normal part of
most dementias. There is a difference, however, between a hallucination and a
delusion, and this is where family caregivers can become confused.
Delusions are ideas or false beliefs
about things not based in reality that are thought to be going on in the
present moment. An individual with dementia may have delusions that someone is
trying to steal their money, poison them or is intent on harming them in some
way. These delusions are reality for a person with dementia.
Delusions are very difficult to deal
with in a person with dementia because it affects how an individual interacts
with those around them.
Provide a Safe Environment
Providing a safe environment for a person suffering from dementia is critical, especially if he or she is experiencing hallucinations due to the disease. Creating this type of environment can be increasingly difficult as the dementia worsens. Moving your loved one into a memory care community may be an option that would not only provide a safe place but also peace of mind knowing that there are professionals on staff at all times in memory care communities that have experience with seniors that are suffering from dementia.Hallucinations and Dementia Types
Many people think of
hallucinations as primarily visual, but people with dementia can also
experience hallucinations involving smell, taste, hearing and touch.
Hallucinations affecting multiple senses are especially common in Alzheimer
disease, which accounts for the majority of dementia cases. Another form of
dementia, dementia with Lewy bodies, is commonly associated with visual and
auditory hallucinations. Vascular dementia, which is caused by disordered blood
flow to the brain, is often associated with visual hallucinations. While not
all people with Parkinson disease develop dementia, those who do may experience
hallucinations similar to those typical of Lewy body dementia.
Neurological Features in Alzheimer Disease
Doctors don't know for sure
exactly what causes hallucinations, but different patterns of brain
degeneration likely play a contributing role. In Alzheimer disease, the outer
area of the brain, called the cortex, is progressively damaged. The disease
starts with parts of the brain used for memory and processing auditory
information, and moves next to attack areas important for self-monitoring,
self-control and spatial processing. A 2013 study suggested that thinning of a
particular part of the cortex, called the supramarginal cortex, may be linked
with the presence of more visual hallucinations in some Alzheimer patients.
Neurological Features in Other Dementias
In comparison, vascular dementia
and Parkinson disease affect deeper brain structures. In these dementia types,
the structures damaged are important for movement. They also play a role in
memory, and in processing information from the senses to understand the
environment. The distinguishing feature of Lewy body dementia is the collection
of abnormal proteins that affect how brain cells work. A study published in
2009 in the "American Journal of Geriatric Psychiatry" suggests that
people with Lewy body dementia have a greater chance of experiencing
hallucinations than those with dementia due to other causes.
Drug Effects
Sometimes the medications used to
manage dementia symptoms can make hallucinations more vivid or frequent.
Neuroleptics, a type of drug used to manage hallucinations and delusions, may
actually increase hallucinations in some people. Similar problems may be seen
with drugs that are commonly prescribed to people with Parkinson disease. If
your loved one takes a lot of medications to manage her health, drug
interactions are also a real concern. Talk to your family member's doctor to
see if adjustments to drug types or doses may help.
Sundowning
"Sundowning" is a
phenomenon in which dementia symptoms, including hallucinations, worsen in the
late afternoon or early evening. The causes are not completely clear, but
several factors might play a role, including fatigue, restlessness from not
enough daily activity, a disrupted sleep-wake cycle, or even reduced lighting,
which makes familiar objects look unclear or frightening. You may be able to
help by planning any outings or activities earlier in the day. Keeping your
loved one's room well-lit and free of obstacles might also help reduce
hallucinations.
Interesting, and thought provoking. You are a weaver of sentences between an actual happening or what may have been created within your thoughts as truth. I have to keep moving the page up and down to re-read and then I may still be confused.
ReplyDeleteIn all that you have written which I have read a lot of.
You have created havoc in your life and others. We all have to a specific degree. Yet you speak of overcoming those obstacles. You have accomplished a great deal.
I would say in honesty that I am sorry you are going through all of this. Though, I think the most important thing at this time is your thought of remaining visible and the wonder of how close to the line you may feel you are at. Rather it real or not. You challenge people to think. You challenge me.
C.
Thank you Cat. You paint a portrait of my writing that I am looking for. Messy yet perfect. Something calling us to lost into and left screaming for more. And yes every bit of it is true and it only barely scratches the surface of my life and experiences that have made me who I am today. I will continue to challenge and not disappoint. Looking forward to your thoughts as well.
ReplyDelete